Can a special needs trust provide home internet upgrades for telehealth access?

The question of whether a special needs trust (SNT) can fund home internet upgrades to facilitate telehealth access is increasingly relevant in today’s digitally-driven world, and the answer is generally yes, with careful consideration of the trust terms and the beneficiary’s overall needs. SNTs are designed to supplement, not replace, government benefits like Supplemental Security Income (SSI) and Medicaid. Maintaining eligibility for these crucial programs is paramount, and any trust expenditure must be carefully evaluated to avoid disqualification. Approximately 26% of adults in the United States have some type of disability, highlighting the broad need for accessible healthcare solutions like telehealth.

What are the rules around using SNT funds for ‘non-support’ items?

Special Needs Trusts are often categorized into first-party or self-settled trusts (funded with the beneficiary’s own resources) and third-party trusts (funded by someone other than the beneficiary). The rules surrounding permissible expenses differ slightly, but generally, both types of trusts can pay for items or services that enhance the beneficiary’s quality of life *beyond* basic needs like food and shelter. “Non-support” items, like internet access, fall into this category. However, the expenditure must be clearly documented as being for the beneficiary’s benefit and not simply a convenience. The Social Security Administration (SSA) scrutinizes trust distributions, especially those exceeding $2,000 per month or $6,000 annually, to ensure they do not jeopardize benefit eligibility. It’s crucial to consult with an experienced estate planning attorney familiar with SNT regulations before making such purchases.

How can internet access directly impact a beneficiary’s health and wellbeing?

Telehealth has become a lifeline for many individuals with disabilities, offering convenient access to medical appointments, therapy sessions, and ongoing care. For someone with limited mobility, transportation challenges, or a compromised immune system, telehealth can eliminate the risks and difficulties associated with traveling to a doctor’s office. High-speed internet access isn’t simply a convenience; it’s a necessity for participating in these vital healthcare services. Consider the story of Mr. Abernathy, a gentleman I represented whose son, David, lived with cerebral palsy and required weekly physical therapy. Before we established an SNT and upgraded his internet, David’s therapy sessions were often cancelled due to inclement weather or transportation issues. “It felt like we were constantly fighting an uphill battle to get him the care he needed,” his mother shared, expressing the frustration many families face.

What happened when a trust failed to account for digital access needs?

I once encountered a situation where a third-party SNT was established for a young woman named Sarah, who had Down syndrome. The trust document was meticulously drafted, covering her housing, medical expenses, and recreational activities. However, it didn’t specifically address the need for reliable internet access. When the COVID-19 pandemic hit, Sarah’s day program and speech therapy sessions moved online. Her family struggled to provide a stable internet connection, resulting in missed appointments and a decline in her progress. They were initially hesitant to use trust funds for something they perceived as a ‘luxury’, fearing it would raise red flags with Medicaid. This highlighted the importance of proactive planning and anticipating the beneficiary’s evolving needs in a rapidly changing digital landscape.

How did proactive trust planning resolve a digital access challenge?

Fortunately, after a consultation, we amended the trust document to explicitly authorize the use of funds for internet access and related technology, ensuring Sarah could fully participate in her virtual programs. This seemingly small adjustment had a profound impact on her quality of life. She reconnected with her peers, continued to receive essential therapies, and even learned new skills through online courses. “It was like a weight lifted off our shoulders,” her father explained. The experience reinforced my belief that well-crafted SNTs must be flexible and adaptable, recognizing that access to technology is now integral to a beneficiary’s overall health, wellbeing, and inclusion. Ultimately, a thoughtfully planned SNT can empower individuals with disabilities to live fulfilling lives, leveraging the benefits of modern technology to overcome barriers and achieve their full potential.


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